Aaron

We found out a few days ago that Aaron has severe to moderate hearing loss. We knew there was something wrong because he wasn't responding to sounds the way a "normal" baby would have. You could yell in his ears, and he would not startle at all. Even though I knew something was wrong, I guess I was still hoping it was just my imagination. I haven't been dealing with it all that well. The hearing loss, as well as everything else that's going on with this little guy has left me feeling pretty lost and out of touch with my "Normal" world. I know that God is there, but sometimes I have just exist and not go much on feelings. Please pray for me. It's a lot easier to type this out, instead of talking about it face to face. I know God will pull us through, but it always takes me time to work through each new diagnosis. When we found out about his heart defect I was the same way.

Aaron goes to the Endocrinologist this Thursday. We'll probably be finding out more about his Hypothyroidism. His pediatrician said he would have to go on medication soon, so maybe they'll tell us more about that when we go. I have to go by myself this time, and I have to go to the downtown Kansas City Children's Hospital. Not fun!! Usually Phil goes with me to all his appointments, but he couldn't get off work.

We go back to the Cardiologist July 6. Hopefully they'll give us a date for the open heart surgery. I just want to get that over with. I want a "fat" little baby. Aaron is still only 11 pounds, and he's four months now. Timmy weighed more than that at birth!! The Dr. said he would start gaining faster as soon as his heart is fixed.

So, we are barely recovered from vacation, and it's back to the whirlwind of specialists visits. I sure hope we don't discover any more of our boys has Di George Syndrome, (oops, the Genetic specialist wants us to call it 22q11.2 Deletion Syndrome. I think Di George is a lot easier.) I keep telling Aaron we aren't going to any more drs. All we ever get is bad news!!