Luke's Pearls of Wisdom

Like you could tell from my earlier post, I was feeling prettydown this morning. I was sitting here blogging, and Steven poked his head in the door and said, "Mom, aren't you coming to VBS? It's starting!" Brilliant me thought it started at 10:30, but it didn't. It started at 9:30. Some pastor's wife!!! So I hurry up and get the two little guys dressed and we head over to the church. I was supposed to help with the songs, but by the time we made it over there, singing was over. Dee had started the Bible story about Balim and the Talking Donkey, and Luke insists he has to go to the bathroom. He gets back there, and sits down. I want him to hurry, so I can listen to the story. I know. I've never grown up. Luke just sits there and sits there, taking his sweet old time. A two year old is never in a hurry! Finally, I say, "Luke, you have to hurry. Mommy has to go help." He looks up at me with his huge brown eyes, and says so innocently,"Mommy, I can't. It just keeps coming and coming." I had to laugh. God knew I needed that!! We'll see what happens tomorrow. The story is about Jonah, so we'll have a "whale" of a story!! (I can almost hear the groans on that one. I can't help it. When you live with 5 boys, everything is corny.)

Aaron

We found out a few days ago that Aaron has severe to moderate hearing loss. We knew there was something wrong because he wasn't responding to sounds the way a "normal" baby would have. You could yell in his ears, and he would not startle at all. Even though I knew something was wrong, I guess I was still hoping it was just my imagination. I haven't been dealing with it all that well. The hearing loss, as well as everything else that's going on with this little guy has left me feeling pretty lost and out of touch with my "Normal" world. I know that God is there, but sometimes I have just exist and not go much on feelings. Please pray for me. It's a lot easier to type this out, instead of talking about it face to face. I know God will pull us through, but it always takes me time to work through each new diagnosis. When we found out about his heart defect I was the same way.

Aaron goes to the Endocrinologist this Thursday. We'll probably be finding out more about his Hypothyroidism. His pediatrician said he would have to go on medication soon, so maybe they'll tell us more about that when we go. I have to go by myself this time, and I have to go to the downtown Kansas City Children's Hospital. Not fun!! Usually Phil goes with me to all his appointments, but he couldn't get off work.

We go back to the Cardiologist July 6. Hopefully they'll give us a date for the open heart surgery. I just want to get that over with. I want a "fat" little baby. Aaron is still only 11 pounds, and he's four months now. Timmy weighed more than that at birth!! The Dr. said he would start gaining faster as soon as his heart is fixed.

So, we are barely recovered from vacation, and it's back to the whirlwind of specialists visits. I sure hope we don't discover any more of our boys has Di George Syndrome, (oops, the Genetic specialist wants us to call it 22q11.2 Deletion Syndrome. I think Di George is a lot easier.) I keep telling Aaron we aren't going to any more drs. All we ever get is bad news!!

I'm Back!!

I'm finding out that it takes me forever to upload pictures for my blog. Does anyone else have this problem? Anyway....
Well, today starts our church's Vacation Bible School. I'm not in charge of it this year. YaHOO!!!!!!!! A friend of mine, Dee Winkler, is this year. Last night we spent several hours setting up. It looks like it's going to be pretty fun for the kids. I know that mine are excited. This is the biggest event of the summer for them. They get to win prizes!!! Just what they need, more stuff that will end up on the bottom of the toy box.
I'm sure some of you have noticed, (I got quite a few complaints) that I haven't updated my blog in a very long time. We were on vacation. The boys and I spent two weeks in Indiana with my parents, and two weeks in Michigan with Phil's parents. We had a wondeful time. The last weekend Phil flew in to Detroit and then we went to Zanesville, Ohio to his grandmother's house. I only wish we could have spent more time with her. She's an awesome lady, and we miss her. The kids had a great time playing with cousins, and a certain neighbor of Grandma Avery's, but we are glad to have Phil back. I'm not sure who missed him more, them or me!!!!

This is my wonderful, testosterone-driven family. (excluding me, of course) Jason is in front, Steven is sitting beside his dad, Luke is sitting on Daddy's lap, Aaron on my lap, and Timmy beside me. We were in Zanesville, OH for Phil's annual family reunion. There was only around 180 people. Pretty small!!!